Tuesday, August 30, 2011

The Request

On this jorney I walk, I am care-ful to not take anythng for grantd. i am fully awar i am on borrowd time. and it is so preshus! due to the amazing discovrys sins '99 whn i was frrst dx'd to 5 yrs aftr whn i reechd my 1st remissn, ther are so many amazng treetments avalbl now! whn i had the necrotic brain tissu begin to canibaliz brain tissu, the IMRT rads was THER to meet my need, thus savng me frm becoming a horific burden to my famly.

For that perspectv, i will be forevr humbld.

This is my persnl page for our Light The Night walk heer in cincy
This is my TEAM page on our Light The Night walk heer!
this is Kathy's Light The Night walk in Wisconsin

we are still holding an online auction, if yuo jump in on tthat, ther are LOTS of such cool prizes. what i AM asking of eech of yuo.....is simply to click 'share'. just that. wod yuo share this with me?

evrybody has ben tuchd by cancer in some way. just share it. as far as donatns, i rquest $1. cos i thnk we can aford $1. and whn peepl hit me up fr mony to ther caus, somtims i just dont have tth obligatry $20 rquested. an it makes me feel like crap, and its embarsing.
i CAN do $5. and def $1.
and if yuo cant evn do tthat rite now, wth the econmy being in th toilet , i totly get it. so just share this with yuor peeps. Pleez. yuo can be a HERO. share it.

i leeve yuo wth tinkling lovly gaelic runes

Deep peace of the running wave to you.
Deep peace of the flowing air to you.
Deep peace of the quiet earth to you.
Deep peace of the shining stars to you.
Deep peace of the infinite peace to you.

thanks for sharing a cup of coffee wth me! Make this a grate day!

Monday, August 22, 2011

Do You Remember

a soul brother of mine, Dave, has ben fiting refractry hodge for 4yrs. one treetmnt aftr anothr, eech one faling and leeving him sicker. thru it all, his spirit has ben honed and strengthnd like a sword. tested by fire. tho his days are numberd, his soul will not brake. he has givn me permissn to share an email he sent me.
i give it to you, with all the love i posess for this guy and his wife, Jen.

Do You Remember?

It’s quickly approaching the end of summer and Jen, my wife, and I were sitting on the porch the other evening, watching all our critters. We could detect the faint order of wood burning, coming from the Great Dismal Swamp fire.

We watched as the lizards played in and searched the dirt in the planters. It was comical to watch them bury their heads and then lift their heads and shake off the dirt. They will make certain that those plants don't have any bugs!

The three Praying Mantises were chasing down their dinner...which they succeeded in! The largest is a female and measures over 7 inches long. We watched her with her eggs and then the babies. The other two are smaller, about 4 or 5 inches. They all provide an enjoyable source of entertainment!

As we sat there watching all this, Jen asked if I can even remember what it was like to feel truly good. This question stunned me for a few seconds and then I began to think about it. Feeling good...it is now as elusive as the smoke we're smelling, wafting around ethereally, touching me on rare occasions. Frustrating me as I know it's there, but there is nothing to hold onto it with. It's been over 4 years I've been dealing with this cancer. Chemo's every other week for eight months, then in the hospital for more and the SCT, followed by more months of various chemos’ and even drug trials. All failing miserably.

Now I just try to manage the pain levels. No, I can honestly say I can't remember what it's like to feel good. Yeah, I have good days and bad days, but really feeling good....Those days are gone. The only regret is that I can't remember the feelings.

So, we continue to sit watching the antics of our critters, sipping lukewarm coffee and talking about the day’s events. The girls, our two Landseer’s (each over two hundred pounds!) come in and look pleadingly at us. They want their brushing, petting and treat!

As dusk begins we reluctantly go inside with girls. They get their treat and lay down...Molly in front of Jen and Dolly in front of me. As dusk turns to night we hear the call of all the other critters...owls, frogs, cicadas and others we can't identify.

It's then that I realize that feeling good is but a moment in time and I damn this disease for keeping that from me and destroying those memories.

If I am up to it and the weather is cooperative, tomorrow evening I will sit on the porch, along with Jen, sipping lukewarm coffee, talking about the day’s events, laughing at the antics of our critters and marveling at the world around us. I also reflect on all the wonderful friends and family that have stayed with me and continue to support me through this journey.


Thursday, August 18, 2011

And as I walk along I wonder......

Where the hell did summer go?!
I'm being a spoild brat, of cors. my summer startd wth my long awated honeymoon, and a renewal in a relashnship i frankly was afrad was ovr. it went on to be alot of fun wth Alexander, my 1st grandpup. but my son, Donnie, movd all th way to cali. ther are othr litning bolts in my storm i wont share heer. but im positiv yuo are feeling th same. where the hell did summer go?!?!

We are geering up for the september Leukemia and Lymphoma Lite The Nite walk. I soooooooo hope all the kids make it agen. (well, 'sides donnie, i undrstand) it truly meens th wrrld to me. and has shown me my path thru this jorny. th times i was abl to walk it slowly. whn i needed a wheelchare th whole time. hopefly this year i will push th wheelchare fr awile by myslf bfor i get in it.

my frend kathy and i are puttng tgethr a Part 2 Online Auction!~ Ther are tons of prizes that didnt get atten last time arownd, so heers the list! Get yuor bids in fast!

Yuo can be a hero! Truth.

and I thank yuo so so mcch for this.

as alwas
Me and Prinse Alexander Nikolai

Friday, August 5, 2011

A day in the Life of Mick, My 'evrything' Dog

To call him a therpy dog isn't enuff. To try to call him an alert dog is trivilizing. He is my Evrything. I'v had him sins he was 8weeks old, he will be 4 on October 31, my haloooooooween pup. He dos somthg extrordnary. he 'speeks ' to me. im shur all dogs comuncate. but he speeks in sch a way that othrs can almost see it happn.
and thay wonder......did i just see that?

Tom coms in th living room eeting a hot dog. mick politely sits and ses 'hay dad. no wht i like? hot dogs' and he wil get it.
he comes to me and then puts his nose rite on the door. 'hay mom. no what i need? to reed the news'. aka reeding othr dogs' pee. unless its th back door. then its 'hay mom. no what i need? to kill that goddam squirrl"
when smbdy comes to the house he grashusly brings them a toy and then proseeds to atempt to bathe them. its only polite.
so he and i oftn sit on my porch. one of his fave thngs to do. peepl-watch. i do puzzls on my ipad and he wachs peepl. he wil start barking reely loud. an i'l say, 'mick what th fuck??? its an old man! dont bark at an old man!' and mick ses, 'hes an asshol. yuo just cant smell it. i no ass when i smell it'. cant argu ther.

im shur i'l add to this later. rite now, mick just told me the dam squirl needs chewin.

Terry of TideTogether gives away 4!! $25 gift sertificats!

Thats rite! ther will be 4 winners. This is NOT A BID item. You simply put your name down in comments and tell us what yuor fave thing is in her shop, TideTogether . Then we will choose by random.org 4 winners! eezy peezy! heers a cupl examples

so get your name in!!!

Monday, August 1, 2011

Light The Night Auction Part 2!

YEP! it was so sucessful we had too many items that didnt get enuff atten to be bid on. So we desided to have a part 2 so thees items cod be front and center and have tth lite shined on them.

Kathy and I wod like to take this momnt to thank all who partisipated, from the bottom of our harts. Thank yuo to all the sponsors who genrusly gave ther wondrfl items, and thank yuo to evry bidder! thats how sucessful it was. We are splitting the proceeds btween our Light The Night pages, which you can see heer:
 MY HEERS TO HOPE team Light The Night Cinci Heers To Hope
Kathy Fry's HEERS TO HOPE team Light The Night Capital 11 Heers To Hope team

OK. Heer is the NEW LIST!

Check out Kathy Fry's offer of a week in Paradise! 
You do NOT want to miss out on bidding on this amazing relaxy adventur! Check it out!


 Take a look at Juliet Armstrong, Jeweler of Royalty's page
she has donated a lovly pair of earrings, her style is beutiful, in beutiful gems and hammerd gold.


this lovly singing scarf is donated to us by maria of Singing Scarves etsy shop 
its an $80 value, so far has a $15 bid on it, so it made it to our 2nd part. check it out and bid!


Terry of TideTogether has 4 incredibl $25 gift serts to give away! This is NOT a BID ITEM! it is a FREE item!! Thats Rite! FREE! 
Simply go to her page, and leev a comment telling us what yuor fave thing is in her shop. thats it! winners will be chosen by Random.org


 heer is somthing we ALL buy! so why not buy it and donate to charity too! Clare Corcoran of Milana gives us thees sweets

 My own photo shoot for locals! ever wanted to be a model? think you got it? are you in the Cincy/Newport area? I'm offering a no-sitting-fee, 3 outfit-change, hour-long photo shoot, which includes editing and the DVD! any location in this area! yuo will have an incredible portfolio. i promise! C'mon! be a STAR for a day!
an example only

be prepared for instant vacay relaxy! bid on this beutiful set of wall prints 
garanteed to slow your breething and give you calm. bask in the sun, and remember when. dont miss out on bidding for this lovly set.

if urban is more yuor style, check out this eclectic wall grouping. its edgy and fun
this is one you def want to bid on!


Linda Nelson has donated this lovly blue daisy bouquet, isnt it just brethtaking? get your bid in!
The Academy presents for th very 1st time the prestegus Pickle Award!!!! compleet with matching christmas ornamnt and the legend
You will NEVR SEE THIS agen! The Academy approvs this message. The Academy acepts Lauds and paypal.


Check this lovly framed quote by Colette
it is just beutifl, and wod lift your spirit up wherevr you choose to display it. simply lovly.

bid on thees beutiful black onyx and copper earrings donated by Tax Unique Designs 
thay are STELLAR.

Wendy of Always Greener has donated a $25 gift cert.! anything in her shop! 
gift certs are diffrent, as yuo do not bid on them. these are FREE!!! yuo simply put your name down on the comments of her page, and tell me what yuor fave thing in her shop is. we choose by random draw. thats IT!

Paul Whortman's hand crafted chandelier dream catcher is stunning. a pic is wrrth a thowsand words. i will let this pic speek! 

this original copyrighted poem comes framed with it


Mr and Mrs Jesse Finkelstein has genrusly donated a beutiful print, to be made into a 10=card set. As you can see, it is beutifl 


 this sweet vintage afghan by Susan Rydell Fischer was donated to our caus and it is lovly! 
dont miss out on bidding!

pleez share this wth yuor frends, family, cyrcles, etc! C'mon! BE HEROS!